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Lobbying registry, Canada (Federal) and Ontario

Canadian Organization for Rare Disorders

Since November 2025, 7 lobbying communication reports name Canadian Organization for Rare Disorders, the most recent dated July 30, 2026. The institutions named most often: House of Commons (4), Health Canada (HC) (2) and Finance Canada (FIN) (1).

Reports in the last 24 months
8
Institutions contacted
3

What it lobbies on

The subjects named most often in its communication reports.

  • Budget8
  • Health8
  • Industry8
  • Research and Development8
  • Science and Technology8
  • Intellectual Property7

Policy areas

Its registry subjects, grouped by policy area. Each area lists the bills tagged to it.

Who it met

Designated public office holders named in its reports, with their title from our list of officials or from the report.

  • Raquel Dancho

    MPCanada (Federal)

  • Tom Kmiec

    MPCanada (Federal)

  • Daniel MacDonald

    Director General, Office of Pharmaceutical Management StrategiesHealth Canada (HC)

  • Mackenzy Metcalfe

    Policy AdvisorFinance Canada (FIN)

  • Helena Jaczek

    MPCanada (Federal)

  • Justine Frame

    Policy AdvisorHealth Canada (HC)

  • Marcus Powlowski

    MPCanada (Federal)

  • Sandenga Yeba

    Director of Policy & Deputy Chief of StaffHealth Canada (HC)

  • Luc Theriault

    MPHouse of Commons

Recent communication reports

Each report is filed with the registry. It records a contact, not a position.

  1. By WILLIAM DEMPSTER

    On Budget; Health; Industry; Intellectual Property

    With House of Commons

    View in the registry

  2. By WILLIAM DEMPSTER

    On Budget; Health; Industry; Intellectual Property

    With House of Commons

    View in the registry

  3. By Stephanie Levee

    On Budget; Health; Industry; Intellectual Property

    With Finance Canada (FIN)

    View in the registry

  4. By WILLIAM DEMPSTER

    On Budget; Health; Industry; Intellectual Property

    With Health Canada (HC)

    View in the registry

  5. By WILLIAM DEMPSTER

    On Budget; Health; Industry; Intellectual Property

    With Health Canada (HC)

    View in the registry

  6. By WILLIAM DEMPSTER

    On Budget; Health; Industry; Intellectual Property

    With House of Commons

    View in the registry

  7. By Stephanie Levee

    On Budget; Health; Industry; Intellectual Property

    With House of Commons

    View in the registry

  8. By Johanne Chambers

    On Budget; Health; Industry; Research and Development

    With House of Commons

    View in the registry

Registered lobbyists

Registrations that name this organization as the client.

About this data

These are contacts reported to the lobbying registries. They do not measure influence or results, or show a position on any bill. Registries for this organization: Canada (Federal) and Ontario.

Registry data as of October 13, 2026.

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